2021. 3. 30. [Press Release] The position of the Patients' Association and the Korean Association of Patient Organizations in regards to the “Patient-Centered Medical Technology Optimization Research Project”
During the selective screening process of the 'Patient-Centered Medical Technology Optimization Research Project', the research topic proposed by the people and patients in 2020, the 'Research on blood sugar-related data collected by type 1 diabetics' was dropped due to a supposed 'conflict of interest'.
The research topic was proposed by KST1D, however the project team never requested any advice and even the problem of a conflict of interest was never confirmed with KST1D, but instead was used maliciously to drop the research topic altogether.
Although the proposed actions were recorded in meetings and reported to the steering committee ahead of time and the patient groups donated their data to the medical staff at the university hospital, there is no conflict of interest and it has now become clear that the project team is not 'patient-centered' at all, as claimed in their name. KST1D is disappointed by the behaviour of a 'patient-centered' research team and would like them to apologize to the patient organizations, as well as drop 'patient-centered' from their project name.
Furthermore, the Ministry of Health and Welfare should take measures to prevent a situation like this from reoccuring.
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